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Email: info@support4sight.org.uk
Support 4 Sight
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Causes images to be seen by people with sight loss. CBS Hallucinations are caused by sight loss and the way your brain reacts to this loss. They are not a sign of a mental health problem.
A variety of hallucinations can be seen, from simple repeated patterns, shapes or colour, to complex hallucinations such as people and landscapes. They are silent and do not involve any other senses. Although they can be disturbing or frightening, people are usually aware they aren’t real.
CBS occurs in people who have varying amounts of sight loss from any eye condition. It is difficult to know how many people in the UK experience CBS as people are often unaware that sight loss can cause hallucinations. Often, they think they might be developing a mental health problem and are reluctant to speak about it to their doctor.
More research is being done to discover how sight loss leads to the hallucinations as it’s not exactly known why.
You may see images every day for a long period of time, or less frequently. It can be short term or lifelong.
Esme’s Umbrella is a charity whose mission is to illuminate the lesser-known aspects of Charles Bonnet Syndrome, providing insights, coping strategies, and a sense of belonging.
Esme’s Umbrella | Living with Charles Bonnet Syndrome
For further information or to arrange a visit to our support centre please call 01245 933572 or email info@support4sight.org.uk. Or visit the RNIB website www.rnib.org.uk
Charles Bonnet Syndrome FAQs
What is Charles Bonnet syndrome?
Charles Bonnet Syndrome (CBS) is a condition where people experience visual hallucinations when they have lost their sight.
It is often associated with eye conditions such as age-related macular degeneration or cataracts.
These hallucinations are purely visual and are not caused by dementia or mental health problems.
What causes Charles Bonnet syndrome?
Charles Bonnet Syndrome (CBS) is caused by vision loss and the brain’s response to this loss. Although the precise process linking vision impairment to hallucinations is not fully understood, research suggests that when the brain receives less visual information due to reduced eyesight, it may create its own images, leading to hallucinations.
Who is at risk of developing Charles Bonnet syndrome?
Individuals with significant vision loss, especially older adults with conditions like macular degeneration, are at higher risk of developing CBS. It is more common in people with severe vision impairment.
What do the hallucinations in Charles Bonnet syndrome look like?
The hallucinations can vary widely. They may include simple patterns or more complex images such as people, animals, or scenes. The hallucinations are typically clear and detailed but are not real.
Hallucinations can happen suddenly and last for a few minutes or several hours. They primarily affect vision and do not affect other senses like smell, hearing, taste, or touch.
If you or someone you know experiences these symptoms, seeking medical advice is crucial for proper management and understanding of the condition.
Is there treatment for Charles Bonnet syndrome?
There is currently no cure for Charles Bonnet Syndrome but understanding the condition and knowing that the hallucinations are not indicative of a more serious problem can provide relief.
It may be helpful to talk to family and friends or your GP if you are finding the hallucinations upsetting.
Can Charles Bonnet syndrome be prevented?
Since CBS is linked to significant vision loss, maintaining good eye health and seeking timely treatment for eye conditions may reduce the risk. However, there is no guaranteed way to prevent CBS entirely.
How can I manage the hallucinations caused by Charles Bonnet syndrome?
Strategies to manage hallucinations include increasing lighting, reducing stress, watching TV or listening to the radio, and staying active and engaged in various activities. Talking to a healthcare professional about the hallucinations can also provide support and reassurance.